Guidance

Your baby carries a gene for sickle cell

Information for parents of babies who carry the sickle cell gene.

Applies to England

Documents

Details

Guidance for parents of babies found to carry the sickle cell gene following their newborn blood spot screening test.

This information is available in A4 PDF format (in English) to print out and provide for people who cannot access digital information. For more information, see the ‘order printed leaflets’ section of our guidance on how to access and order leaflets.

Translations are available in Bengali, French and Urdu. The Bengali translation can be found below the English version above. See the links in the top right of this page for the French and Urdu translations.

Updates to this page

Published 19 August 2020
Last updated 24 June 2025 + show all updates
  1. Changed lead organisation to NHS England. Removed reference to screening helpdesk.

  2. Added plain A4 PDF version for printing, to provide for people unable to access this information online.

  3. Added translations in Bengali, French and Urdu.

  4. First published.

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