Change description : 2025-12-24 10:52:00: Updated to extend the closing date to 30 March 2026 and to add a link to the BSL version of this consultation. [Policy papers and consultations]
We want to hear what people think about our draft guidance on Down syndrome.
This consultation closes at
Consultation description
The Down Syndrome Act 2022 is a law to help make life better for people with Down syndrome and their families and carers. As part of the law, we have written some guidance. Guidance is like rules that services should follow.
The guidance says what services should do to support people with Down syndrome.
To help us write the draft guidance, we looked at what people told us in the call for evidence.
Until we decide on the final version of the guidance, it is called a ‘draft’. We want to know what you think about the draft guidance to help us decide on the final version.
We would like lots of people to answer our questions. This will help us to see if we have put the right things in the guidance and if anything needs to change.
The ‘Questions for professionals’ booklet is for people (and organisations) who work with people with Down syndrome, a similar condition and/or a learning disability.
How to send us your answers
You can answer:
for yourself
for someone else
for an organisation
Follow the ‘Respond online’ link in the ‘Ways to respond’ box below to tell us what you think about the draft guidance.