Open consultation

Down Syndrome Act 2022 draft statutory guidance

Applies to England

Summary

This consultation seeks views on the draft statutory guidance issued under the Down Syndrome Act 2022.

This consultation closes at

Consultation description

This consultation sets out what the Department of Health and Social Care is proposing for the statutory guidance issued under the Down Syndrome Act 2022.

We have considered public views in response to the Down Syndrome Act 2022 guidance: call for evidence regarding areas to include in the draft statutory guidance.

We would now like to invite people to take part in the full consultation to widely test the draft statutory guidance ahead of final publication.

We welcome responses from:

  • people with Down syndrome and their families and/or carers
  • people with other chromosomal conditions, genetic conditions and/or a learning disability who have similar needs (to note, this list is not exhaustive) and their families and/or carers
  • organisations
  • people who work in healthcare, social care, education or housing services

You can respond:

  • as an individual
  • on behalf of someone else
  • on behalf of an organisation

See the easy read versionand BSL versions of the consultation for easy read versions of the:

  • online survey
  • draft guidance
  • privacy notice

BSL versions(in ofeasy theread draft guidance and consultation will be published in due course.

only)

Documents

Ways to respond

Updates to this page

Published 5 November 2025
Last updated 24 December 2025 href="#full-history">+ show all updates
  1. Updated to extend the closing date to 30 March 2026 and to add a link to the BSL version of this consultation.

  2. First published.

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